Resources for Adult Siblings of Individuals with Disabilities

Sibling Leadership Network

The Sibling Leadership Network (SLN) is a national nonprofit organization that provides siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.


SibsNY is a volunteer organization dedicated to providing the siblings of individuals with intellectual, developmental and learning disabilities with information and support. SibsNY is the NY state chapter of the national SLN.

Sibling Support Project

The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.

SibNet on Facebook

SibNet is an interactive, closed group of adult siblings of people who have disabilities. SibNet siblings share concerns, challenges, joys, insights, information, resources, and strategies.

The Arc’s Center for Future Planning

The Arc’s Center for Future Planning supports and encourages adults with intellectual and developmental disabilities (I/DD) and their families to plan for the future. The website provides reliable information and assistance to families and individuals with I/DD on areas such as person-centered planning, decision-making, housing options, financial planning, establishing daily activities, and making social connections.

Sibling Advocacy Toolkit

This Advocacy Toolkit is designed to make use of siblings’ unique roles for advocacy policy. Aimed at providing siblings with useful information, strategies and tools, this toolkit demonstrates that advocacy consists of multiple layers from connecting with other siblings to visiting with legislators.

Quality Mall - Sibling Department

Quality Mall provides free information about person-centered supports for people with intellectual/developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with intellectual/developmental disabilities live, work and participate in our communities and improve the quality of their supports. The Sibling Department has resources specific to siblings of people with disabilities and is especially useful for siblings.

Family Support Research & Training Center

The FSRTC is a collaboration of researchers and organizations who are focused on synthesizing and generating knowledge about the needs and experiences of families who provide support to children and adults with disabilities across the life course. 

Sibling Experiences

Learn more about the sibling experience from the voices of adult siblings

Liz's Sibling Stance

Learn more about the sibling experience from a self-advocate

Resources for children and teen sibs


Sibshops are lively peer support and educational programs where school-age brothers and sisters meet other sibs (usually for the first time), have fun, laugh, talk about the good and not-so-good parts of having a sib with special needs, play some great games, and learn something about the services their brothers and sister receive. Use this link to find a Sibshop near you.


Sibteen is a place where teenage sibs of people with disabilities can connect with others who get it. It’s a fun and thoughtful group where members share unique concerns, joys, frustrations, and information with others who truly understand!

Important Policy Information for Siblings

Frequently Asked Questions regarding the Family Medical Leave Act and Siblings

Books for siblings of all ages

How to Be a Sister: A Love Story with a Twist

by Eileen Garvin

The Sibling Slam Book: What it’s Really Like to Have a Brother or Sister with Special Needs

By Don Meyer

The Sibling Survival Guide: Indispensable Information for Brothers and Sisters of Adults with Disabilities

Edited by Don Meyer & Emily Holl

Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs

By Don Meyer

Riding the Bus with My Sister

By Rachel Simon